Kontakt 2018, 20(4):e370-e374 | DOI: 10.1016/j.kontakt.2018.10.010
The social dimension of health literacy in relation to cancerSocial Sciences in Health - Review article
- Univerzita Pavla Jozefa Šafárika v Košiciach, Filozofická fakulta, Katedra sociálnej práce, Košice, Slovenská republika
This paper analyses the concept of health literacy. Its importance is growing due to the complexity of the patient care system, especially in the field of oncological disease. A certain level of health literacy is essential to understanding health information and services for patients. Oncology social work is not established in the conditions of Slovakia. Nevertheless, in the context of a holistic approach, the problem of oncological disease also begins to be perceived in the social dimension. Social worker services abroad become an inseparable segment of care for patients with an oncological diagnosis. In the author's opinion, health literacy should therefore imply knowledge of the social determinants of health, the social consequences of cancer, the possibilities of social work in the social treatment of the disease, as well as the services provided by the social worker. For this reason, this review study looks at the construct of health literacy from a social point of view, focusing on cancer patients specifically.
Keywords: Cancer; Health literacy; Social worker
Received: July 11, 2018; Revised: August 27, 2018; Accepted: October 16, 2018; Published: November 30, 2018 Show citation
References
- Stewart BW, Wild CP. World Cancer Report. Lyon: International Agency for Research on Cancer; 2014.
- Křivohlavý J. Psychologie zdraví. Praha: Portál; 2003.
- Albery IP, Munafó M. Key Concepts in Health Psychology. London: SAGE Publications Ltd.; 2008.
Go to original source...
- Kaplan RM, Sallis JF Jr., Patterson TL. Zdravie a správanie človeka. Bratislava: Slovenské pedagogické nakladateľstvo; 1996.
- Plante TG. Současná klinická psychologie. Praha: Grada Publishing; 2001.
- Raudenská J, Javůrková A. Lékařská psychologie ve zdravotnictví. Praha: Grada Publishing; 2011.
- McGuire S. World Cancer Report 2014. Geneva, Switzerland: World Health Organization, International Agency for Research on Cancer, WHO Press, 2015. Advances in Nutrition 2016;7(2):418-19.
Go to original source...
Go to PubMed...
- Selden CR, Zorn M, Ratzan SC, Parker RM, 2000. National Library of Medicine current bibliographies in medicine: Health literacy. Bethesda, MD: National Institutes of Health.
- Morris NS, Field TS, Wagner JL, Cutrona SL, Robin DW, Gaglio B, et al. The Association between Health Literacy and Cancer-Related Attitudes, Behaviors, and Knowledge. J Health Commun 2013;18(S1):223-41. Doi: 10.1080/10810730.2013.825667.
Go to original source...
Go to PubMed...
- Krug S. Health Literacy: A Missing Piece of the Puzzle in Cancer Care. Oncology Nurse Advisor; 2013. [online] [cit. 2018-04-15]. Dostupné z: https://www.oncologynurseadvisor.com/c101-empower-your-patient/health-literacy-a-missing-piece-of-the-puzzle-in-cancer-care/article/317836/
- Davis TC, Williams MV, Marin E, Parker RM, Glass J. Health Literacy and Cancer Communication. CA Cancer J Clin 2002;52(3):134-49.
Go to original source...
Go to PubMed...
- Koay K, Schofield P, Jefford M. Importance of Health Literacy in Oncology. Asia Pac J Clin Oncol 2012;8(1):14-23. Doi: 10.1111/j.1743-7563.2012.01522.x.
Go to original source...
Go to PubMed...
- Levická J a kol. Identita slovenskej sociálnej práce. Trnava: Typi Universitatis Tyrnaviensis; 2015.
- Donelle L, Arocha JF, Hoffman-Goetz L. Health Literacy and Numeracy: Key factors in Cancer Risk Comprehension. Chronic Dis Can 2008;29(1):1-8.
Go to original source...
Go to PubMed...
- Vacková J a kol. Zdravotně sociální aspekty života imigrantů v České republice. Praha: Triton; 2012.
- WHO. Health Promotion. Health Literacy and Health Behaviour; 2018. [online] [cit. 2018-04-07]. Dostupné z: http://www.who.int/healthpromotion/conferences/7gchp/track2/en/
- Nielsen-Bohlman L, Panzer AM, Kindig DA. Health Literacy: A Precription to end Confusion. Washington (DC): Nation Academic Press (US) (Chapter 2); 2004.
Go to original source...
- Sentell T, Pitt R, Buchthal OV. Health Literacy in a Social Context: Review of Quantitative Evidence. Health Literacy Research and Practice 2017;1(2):e41-e70. Doi: 10.3928/24748307-20170427-01.
Go to original source...
Go to PubMed...
- Mendenhall AN, Frauenholtz S. Mental Health Literacy: Social Work's Role in Improving Public Mental Health. Social Work 2013;58(4):365-8.
Go to original source...
Go to PubMed...
- Žiaková E. C-systém zvládania záťaže u onkologicky chorých pacientov a pacientok v kontexte sociálnej práce. In: Podoby vnútorných i vonkajších faktorov zvládania záťaže z pohľadu teórie i praxe sociálnej práce. Košice: Katedra sociálnej práce FF UPJŠ; 2016.
- Parker R. Health Literacy: A Challenge for American Patients and Their Health Care Providers. Health Promotion International 2000;15(1):277-83. Doi: 10.1093/heapro/15.4.277.
Go to original source...
- Dewalt D, Berkman N, Sheridan S, Lohr K, Pignone M. Literacy and Health Outcomes: A Systematic Review of the Literature. J Gen Inter Med 2004;19(12):1228-39. Doi: 10.1111/j.1525-1497.2004.40153.x.
Go to original source...
Go to PubMed...
- McCray A. Promoting Health Literacy. J Am Med Inform Assoc 2005;12(2):152-63. Doi: 10.1197/jamia.M1687.
Go to original source...
Go to PubMed...
- Paqan JA, Brown CJ, Asch DA, Armstrong K, Bastida E, Guerra C. Health Literacy and Breast Cancer Screening among Mexican American Women in South Texas. J Cancer Educ 2012;27(1):132-7. Doi: 10.1007/s13187-011-0239-6.
Go to original source...
Go to PubMed...
- Lopez-McKee G, McNeill JA, Bader J, Morales P. Comparison of Factors Affecting Repea Mammorgraphy Screening of Low-income Mexican American Women. Oncol Nurs Forum 2008;35(6):941-7. Doi: 10.1188/08.ONF.941-947.
Go to original source...
Go to PubMed...
- Powe BD, Finnie R. Cancer Fatalism: The State of the Science. Cancer Nurs 2003;26(6):454-65.
Go to original source...
Go to PubMed...
- Power E, Van Jaarsveld CH, McCaffery K, Miles A, Atkin W, Wardle J. Understanding Intentions and Action in Colorectal Cancer Screening. Ann Behav Med 2008;35(3):285-94. Doi: 10.1007/s12160-008-9034-y.
Go to original source...
Go to PubMed...
- Daley CM, Kraemer-Diaz A, James AS, Monteau D, Joseph S, Pacheco J, et al. Breast Cancer Screening Beliefs and Behaviors among American Indian Women in Kansas and Missouri: A Qualitative Inquiry. J Cancer Educ 2012;27(S1):S32-S40. Doi: 10.1007/s13187-012-0334-3.
Go to original source...
Go to PubMed...
- Bynum SA, Davis JL, Green BL, Katz RV. Unwillingness to Participate in Colorectal Cancer Screening: Examining Fears, Attitudes, and Medical Mistrust in an Ethnically Diverse Sample of Adults 50 Years and Older. Am J Heath Promot 2012;26(5):295-300. Doi: 10.4278/ajhp.110113-QUAN-20.
Go to original source...
Go to PubMed...
- Berkman ND, Sheridan SL, Donahue KE, Halpern DJ, Crotty K. Low Health Literacy and Health Outcomes: An Up¬dated Systematic Review. Ann Intern Medic 2011;155(2)97-107. Doi: 10.7326/0003-4819-155-2-201107190-00005.
Go to original source...
Go to PubMed...
- Roach AR, Lykins EL, Gochett CG, Brechting EH, Graue LO, Andrykowski MA. Differences in Cancer Information-Seeking Behavior, Preferences, and Awareness between Cancer Survivors and Healthy Controls: A National, Population-Based Survey. J Cancer Educ 2009;24(1):73-9. Doi: 10.1080/08858190802664784.
Go to original source...
Go to PubMed...
- Adjei BE, Mohammed KA, Geneus CJ, Tobo BB, Wirth LS, Yang L, Osazuwa-Peters N. Correlates of Health Information Seeking between Adults Diagnosed with and without Cancer. PLoS ONE 2018;13(5). Doi: 10.1371/journal.pone.0196446.
Go to original source...
- McCloud RF, Jung M, Gray SW, Viswanath K. Class, Race and Ethnicity and Information Avoidance among Cancer Survivors. Br J Cancer 2013;108(10):1949-56. Doi: 10.1038/bjc.2013.182.
Go to original source...
Go to PubMed...
- Jung M, Ramanadhan S, Viswanath K. Effect of Information Seeking and Avoidance Behavior on Self-rated Health Status among Cancer Survivors. Patient Educa Couns 2013;92(1):100-6. Doi: 10.1016/j.pec.2013.02.008.
Go to original source...
Go to PubMed...
- Fox S. Health Topics. Pew Research Center's Internet & American Life Project; 2011. [online] [cit. 2018-03-21]. Dostupné z: http://www.pewinternet.org/2011/02/01/health-topics-2/
- Willoughby JF, Myrick JG. Does Context Matter? Examining PRISM as a Guiding Framework for Context-Specific Health Risk Information Seeking Among Young Adults. J Health Commun 2016;21(6):696-704. Doi: 10.1080/10810730.2016.1153764.
Go to original source...
Go to PubMed...
- Song H, Cramer EM, McRoy S. Information Gathering and Technology Use among Low-Income Minority Men at Risk for Prostate Cancer. Am Journal Mens Health 2015;9(3):235-46. Doi: 10.1177/1557988314539502.
Go to original source...
Go to PubMed...
- Thorburn S, Keon KL, Kue J. Sources of Breast and Cervical Cancer Information for Hmong Women and Men. Women Health 2013;53(5):468-78. Doi: 10.1080/03630242.2013.796305.
Go to original source...
Go to PubMed...
- Yang Q, Chen Y, Wendorf Muhamad J. Social Support, Trust in Health Information, and Health Information-Seeking Behaviors (HISBs): A Study Using the 2012 Annenberg National Health Communication Survey (ANHCS). Health Commun 2017;32(9):1142-50. Doi: 10.1080/10410236.2016.1214220.
Go to original source...
Go to PubMed...
- Chen Y, Feeley TH. Numeracy, Information Seeking, and Self-Efficacy in Managing Health: An Analysis Using the 2007 Health Information National Trends Survey (HINTS). Health Commun 2014;29(9):843-53. Doi: 10.1080/10410236.2013.807904.
Go to original source...
Go to PubMed...
- Volkman JE, Luger TM, Harvey KL, Hogan TP, Shimada SL, Amante D, et al. The National Cancer Institute's Health Information National Trends Survey [HINTS]: A National Cross-Sectional Analysis of Talking to Your Doctor and Other Healthcare Providers for Health Information. BMC Fam Pract 2014;15(111). Doi: 10.1186/1471-2296-15-111.
Go to original source...
Go to PubMed...
- Reamer FG. The Evolution of Social Work Ethics: Bearing Witness. Advances in Social Work 2014;15(1):163-81.
Go to original source...
- Lee SY, Arozullah AM, Cho YI. Health Literacy, Social Support, and Health: A Research Agenda. Soc Sci Med 2004;58(7):1309-21. Doi: 10.1016/S0277-9536(03)00329-0.
Go to original source...
Go to PubMed...
- Rubin DL, Parmer J, Freimuth V, Kaley T, Okundaye M. Associations between Older Adults' Spoken Interactive Health Literacy and Selected Health Care and Health Communication Outcomes. J Health Commun 2011;16(S3):191-204. Doi: 10.1080/10810730.2011.604380.
Go to original source...
Go to PubMed...
- Beauchamp A, Buchbinder R, Dodson S, Batterham RW, Elsworth GR, McPhee C, et al. Distribution of Health Literacy Strengths and Weaknesses across Socio-demographic Groups: A Cross-Sectional Survey Using the Health Literacy Questionnaire (HLQ). BMC Public Health 2015;15(678). Doi: 10.1186/s12889-015-2056-z.
Go to original source...
Go to PubMed...
- Lambert K, Mullan J, Mansfield K, Lonergan M. A Cross-Sectional Comparison of Health Literacy Deficits among Patients with Chronic Kidney Disease. J Health Commun 2015;20(S2):16-23. Doi: 10.1080/10810730.2015.1080329.
Go to original source...
Go to PubMed...
- Dodson S, Osicka T, Huang L, McMahon LP, Roberts MA. Multifaceted Assessment of Health Literacy in People Receiving Dialysis: Associations with Psychological Stress and Quality of Life. J Health Commun 2016;21(S2):91-8. Doi: 10.1080/10810730.2016.1179370.
Go to original source...
Go to PubMed...
- Jessup, RL, Osborne RH, Beauchamp A, Bourne A, Buchbinder R. Health literacy of recently hospitalised patients: A cross-sectional survey using the Health Literacy Questionnaire (HLQ). BMC Health Serv Res 2017;17:52. Doi: 10.1186/s12913-016-1973-6.
Go to original source...
Go to PubMed...
- Antonucci TC, Ajrouch KJ, Janevic MR. The Effect of Social Relations with Children on the Education-health Link in Men and Women Aged 40 and Over. Soc Sci Med 2003;56(5):949-60.
Go to original source...
Go to PubMed...
- McCarthy B. Family Members of Patients with Cancer: What They Know, How They Know and What They Want to Know. Eur J Oncol Nurs 2011;15(5):428-41. Doi: 10.1016/j.ejon.2010.10.009.
Go to original source...
Go to PubMed...
- Yuen EYN. Development of a Conceptual Model of Cancer Caregiver Health Literacy. Eur J Cancer Care 2016;25(2):294-306. Doi: 10.1111/ecc.12284.
Go to original source...
Go to PubMed...
- Edwards M, Wood F, Davies M, Edwards A. 'Distributed health literacy': Longitudinal Qualitative Analysis of the Roles of Health Literacy Mediators and Social Networks of People Living with a Long-term Health Condition. Health Expect 2015;18(5):1180-93. Doi: 10.1111/hex.12093.
Go to original source...
Go to PubMed...
- Bevan JL, Pecchioni LL. Understanding the Impact of Family Caregiver Cancer Literacy on Patient Health Outcomes. Patient Educ Couns 2008;71(3):356-64. Doi: 10.1016/j.pec.2008.02.022.
Go to original source...
Go to PubMed...
- Northouse LL, Katapodi MC, Song L, Zhang L, Mood DW. Interventions with Family Caregivers of Cancer Patients: Meta-analysis of Randomized Trials. CA Cancer J Clin 2010;60(5):317-39. Doi: 10.3322/caac.20081.
Go to original source...
Go to PubMed...
- Mareš J. Posttraumatický rozvoj: nové pohledy, nové teorie a modely. Československá psychologie 2009;53(3):271-90.