Kontakt 2008, 10(1):72-78 | DOI: 10.32725/kont.2008.010
Genetic information on man: legal problemsHealth and Social Sciences
- Ruská univerzita přátelství národů v Moskvě, Ruská federace
Results of genetic studies are applied in practical human medicine without appropriate legal protection. There is no legal framework for the use of results of biotechnology research, particularly in pharmaceutical biotechnology.
No legally binding limit of the genetic information confidentiality has been established.
It is desirable to provide a legal framework of a human "genetic passport". The genetic passport may be defined as a set of data on genetic characteristics of its owner.
There is quite insufficient protection of givers of tissues and organs, and rights of people in long-term unconsciousness at intensive care units are also protected insufficiently.
In spite of considerable improvement, there are still unclear facts concerning the protection of civil and human rights in persons with mental disorders and in those with combined congenital defects.
At universities, teaching of ethics was extended, but information is still missing in the field of the healthcare law.
Principal innovations of the constitution and next legal rules of the Russian Federation are proposed.
Keywords: genetics; information; genotype; biotechnology; guardianship; genetic passport; protection of personality; legal rules
Received: March 10, 2008; Accepted: April 18, 2008; Prepublished online: June 27, 2008; Published: July 27, 2008 Show citation
