Kontakt 2018, 20(2):e160-e165 | DOI: 10.1016/j.kontakt.2018.04.003

Validation of PedsQLTM questionnaires for assessing the quality of life in children and their familiesSocial Sciences in Health - Review article

Ingrid Baloun*, Miloš Velemínský
Jihočeská univerzita v Českých Budějovicích, Zdravotně sociální fakulta, Ústav laboratorní diagnostiky a veřejného zdraví, České Budějovice, Česká republika

Quality of life is an individual's perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns. For the assessment of the quality of life in children, a number of questionnaires are used. One of them is the Pediatric Quality of Life InventoryTM (PedsQL) questionnaire. This questionnaire has an added value in the possibility to engage the whole family.
The goal of this study is to increase the awareness about the content and reliability of the PedsQL questionnaires and to verify their content and reliability. After studying the information gained by a secondary data analysis, it will be mutually compared and the possibilities of its use for the assessment of the quality of life in children with specific chronic diseases will be suggested. For the assessment, we used a secondary data analysis gained from the WOS and SCOPUS databases, as well as from those that can be found in the PubMed database (e.g. MEDLINE). The source for obtaining the PedsQL questionnaires is ePROVIDE, where questionnaires are available after registration. When selecting the publications, we considered whether the measure of reliability - the Cronbach's alpha, was stated.
We used the Boolean operators with the key words PedsQL, PedsQL AND Validation, PedsQL AND Reliability. The oldest references used for this article are from June 1996 and the newest are from August 2017. After analysing these sources, we carried out the synthesis of the gained information. We used the Haynes pyramid EDA to assess the results.

Keywords: PedsQL; Validity; Reliability; Quality of life; Questionnaire

Received: January 10, 2018; Revised: March 15, 2018; Accepted: April 13, 2018; Published: June 26, 2018  Show citation

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Baloun I, Velemínský M. Validation of PedsQLTM questionnaires for assessing the quality of life in children and their families. Kontakt. 2018;20(2):e160-165. doi: 10.1016/j.kontakt.2018.04.003.
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    References

    1. The WHOQOL Group. The World Health Organization Quality of Life Assessment (WHOQOL): measuring quality of life; 1997. [online] [cit. 2007-06-11]. Dostupné z: http://www.who.int/mental_health/media/68.pdf
    2. Kobayashi K, Kamibeppu K. Measuring quality of life in Japanese children: development of the Japanese version of PedsQL. Pediatrics International: Official Journal of the Japan Pediatric Society 2010;52(1):80-8. Go to original source... Go to PubMed...
    3. Křivohlavý J. Psychologie nemoci. Praha: Portál; 2002, 198 s.
    4. Hnilicová H. Kvalita života a její význam pro medicínu a zdravotnictví. In: Payne J. Kvalita života a zdraví. Praha: Triton; 2005, s. 205-16.
    5. Mareš J. Kvalita života dětí a dospívajících I. Brno: MSD spol. s r. o.; 2006.
    6. Pfeiffer J a kol. Koordinovaná rehabilitace. České Budějovice: ZSF JU v Českých Budějovicích; 2014.
    7. Křivohlavý J. Kvalita života. In: Sborník příspěvků z konference konané 25. 10. 2004 v Třeboni. Kostelec nad Černými lesy: Institut zdravotní politiky a ekonomiky; 2004.
    8. Cheng CP, Luh W, Yang A, SU Ch, Lin Ch. Agreement of children and parents scores on Chinese version of Pediatric Quality of Life Inventory version 4.0: further psychometric development. Applied Research Quality Life 2016;11(3):891-906. Go to original source...
    9. Pilar G, McCarthy M. Measuring health - a step in development of city health profiles. Copenhagen: World Health Organisation Regional Office for Europe; 1996.
    10. Staquet MJ, Hays RD, Fayer PM. Quality of life assessment in clinical trial. Oxford: Oxford University Press; 1998.
    11. Dragomirecká E, Škoda C. Měření kvality života v sociální psychiatrii. Česká a Slovenská Psychiatrie 1997;93(8):423-32.
    12. Vaďurová H, Muhlpachr P. Kvalita života. Brno: Masarykova univerzita; 2005.
    13. Flapper BC, Shoemaker MM. Effects of methylphenidate on quality of life in children with both developmental coordination disorder and ADHD. Dev Med Child Neurol 2008;50(4):294-99. Go to original source... Go to PubMed...
    14. Landgraft JM, Albert LN. Functional status and well-being of children representing three cultural groups: initial self-reports using CHQ-CF87. Psychology of Health 1997;12(6):839-54. Go to original source...
    15. Landgraft JM, Albert LN, Ware JE, Jr. The CHQ: a user's manual. Boston: The Health Institute, New England Medical Center; 1996.
    16. Eiser C, Cotter I, Oades P, Seamark D, Smith R. Health-related quality of life measures for children. Int J Cancer Suppl 1999;12:87-90. Go to original source...
    17. Eiser C, Vance YH, Seamark D. The development of a theoretically driven generic measure of quality of life for children aged 6-12 years: a preliminary report. Child Care Health Dev 2000;26(6):445-56. Go to original source... Go to PubMed...
    18. Bruil J. Development of a quality of life instrument for children with chronic illness. Doctoral thesis in the field of Health psychology. Leiden: University of Leiden; 1999, pp. 95-141.
    19. Varni JW. Pediatric Quality of Life InventoryTM; 2004. [online] [cit. 2017-02-27]. Dostupné z: http://www.mapiresearch.fr/t_03_serv_dist_Cduse_pedsql.htm
    20. Varni JW, Burwinkle TM, Jacobs JR, Gottschalk M, Kaufman F, Jones KL. The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module. Diabetes Care 2003;26(3):631-7. Go to original source... Go to PubMed...
    21. Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical care 2001;39(8):800-12. Go to original source... Go to PubMed...
    22. Gurková E. Hodnocení kvality života: pro klinickou praxi a ošetřovatelský výzkum. Praha: Grada; 2011.
    23. Varni JW. PedsQL; 2017. [online] [cit. 2017-03-27]. Dostupné z: http://www.pedsql.org/
    24. Burešová G, Velemínský M, Jr., Velemínský M, Sr. Health related quality of life of children and adolescents with Type 1 diabetes. Neuroendocrinology Letters 2008;29(6):1045-1053. Go to PubMed...
    25. ePROVIDE; 2017. [online] [cit. 2017-05-13]. Dostupné z: https://eprovide.mapi-trust.org/
    26. Varni JW. PedsQL; 2008. [online] [cit. 2017-02-27]. Dostupné z: http://www.pedsql.org/translations.html
    27. Scarpelli AC, Paiva SM, Pordeus IA, Varni JW, Viegas CM, Allison PJ. The Pediatric Quality of Life Inventory (PedsQL) family impact module: reliability and validity of the Brazilian version. Health and Quality of Life Outcomes 2008;6:35. Go to original source... Go to PubMed...
    28. Kook SH, Varni JW. Validation of the Korean version of the Pediatric Quality of Life InventoryTM 4.0 (PedsQLTM) generic core scales in school children and adolescents using the RASCH model. Health and quality of life outcomes 2008;6:41. Go to original source... Go to PubMed...
    29. Mareš J. Přehledové studie: jejich typologie, funkce a způsob vytváření. Pedagogická orientace 2013;24(3):427-54. Go to original source...
    30. Miovský M. Kvalitativní přístup a metody v psychologickém výzkumu. Praha: Grada; 2006.
    31. Kobayashi K, Okano Y, Hohashi N. Reliability and validity of the PedsQLTM Multidimensional fatigue scale in Japan. Quality of Life Research: an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation 2011;20(7):1091-102. Go to original source... Go to PubMed...
    32. Chen R, Hao Y, Feng L, Zhang Y, Huang Z. The Chinese version of the Pediatric Quality of Life Inventory™ (PedsQLTM) Family impact module: cross-cultural adaptation and psychometric evaluation. Health and quality of life outcomes 2011;23:9. Go to original source... Go to PubMed...
    33. Chang Y, Luo Y, Zhou Y, Wang R, Song N, Zhu G, et al. Reliability and validity of the Chinese mandarin version of PedsQL 3.0 Transplant module. Health & Quality of Life Outcomes 2016;16(1):142. Go to original source... Go to PubMed...
    34. Duan X, Zhang S, Xiao N. Reliability and validity of the PedsQLTM Generic core scales 4.0 for Chinese children with epilepsy. Epilepsy and Behavioral 2012;23(4): 431-6. Go to original source... Go to PubMed...
    35. Ye Q, Liu K, Wang J, Zhao L. Reliability and validity of the Chinese version of the PedsQL Multidimensional fatigue scale in children with acute leukemia. International Journal of Nursing Sciences 2016;3(2):146-152. Go to original source...
    36. Yildiz Kabak V, Yakut Y, Çetin M, Düger T. Reliability and validity of the Turkish version of the PedsQL 3.0 Cancer module for 2-7-year-old and the PedsQL 4.0 Generic core scales for 5-7-year-old: the Hacettepe University experience. Turk J Haematol 2016;33(3):236-43. Go to original source... Go to PubMed...
    37. Eiser C, Vance YH, Horne B, Glaser A, Galvin H. The value of the PedsQLTM in assessing quality of life in survivors of childhood cancer. Child: Care, Health and Development 2003;29(2):95-102. Go to original source... Go to PubMed...
    38. Bhat SR, Goodwin TL, Burwinkle TM, Lansdale MF, Dahl GV, Huhn SL, et al. Profile of daily life in children with brain tumours: an assessment of health-related quality of life. Journal of Clinical Oncology 2005;23(24):5493-500. Go to original source... Go to PubMed...
    39. Roizen M, Rodríguez S, Bauer G, Medin G, Bevilacqua S, Varni JW, Dussel V. Initial validation of the Argentinean Spanish version of the PedsQL 4.0 Generic core scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings. Health Qual Life Outcome 2008;6:59. Go to original source... Go to PubMed...
    40. Weissberg-Benchell J, Zielinski TE, Rodgers S, Greenley RN, Askenazi D, Goldstein SL, et al. Pediatric health-related quality of life: feasibility, reliability and validity of the PedsQL Transplant module. Am J Transplant 2010;10(7):1677-85. Go to original source... Go to PubMed...
    41. Varni JW, Burwinkle TM, Seid M. PedsQLTM 4.0 as a school population health measure: feasibility, reliability, and validity. Quality of Life Research 2006;15(2): 203-15. Go to original source... Go to PubMed...
    42. Mareš J a kol. Kvalita života dětí a dospívajících II. Brno: MSD spol. s r. o.; 2007.
    43. Varni JW, Limbers CA, Burwinkle TM. How young can children reliably and validly self-report their health-related quality of life?: an analysis of 8,591 children across age subgroups with the PedsQLTM 4.0 Generic Core Scales. Health and Quality of Life Outcomes 2007;5(1):1-13. Go to original source... Go to PubMed...
    44. Varni JW, Limbers CA. The PedsQL 4.0 Generic core scales young adult version: feasibility, reliability and validity in a university student population. Journal of Health Psychology 2009;14(4):611-22. Go to original source... Go to PubMed...
    45. Limbers CA, Newman DA, Varni JW. Factorial invariance of child self-report across race/ethnicity groups: a multigroup confirmatory factor analysis approach utilizing the PedsQL 4.0 Generic core scales. Annals of Epidemiology 2009;19(8):575-81. Go to original source... Go to PubMed...
    46. Powers SW, Patton SR, Hommel KA, Hershey AD. Quality of life in paediatric migraine: characterization of age-related effects using PedsQL 4.0. Cephalalgia 2004;24(2):120-7. Go to original source... Go to PubMed...
    47. Berrin SJ, Malcarne VL, Varni JW, Burwinkle TM, Sherman SA, Artavia K, Chambers HG. Pain, fatigue, and school functioning in children with cerebral palsy: a path-analytic model. Journal of Pediatric Psychology 2006;32(3):330-7. Go to original source... Go to PubMed...
    48. Varni JW, Seid M, Smith Knight T, Burwinkle T, Brown J, Szer IS. The PedsQL in pediatric rheumatology: reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory Generic core scales and Rheumatology module. Arthritis and Rheumatism 2002;46(3):714-25. Go to original source... Go to PubMed...
    49. Trapanotto M, Giorgino D, Zulian F, Benini F, Varni JW. The Italian version of the PedsQL in children with rheumatic diseases. Clinical and Experimental Rheumatology 2009;27(2):373-80. Go to PubMed...

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