Kontakt 2019, 21(1):87-92 | DOI: 10.32725/kont.2019.005

Use of validated PedsQLTM questionnaires regarding children with ADHD and autismSocial Sciences in Health - Review article

Ingrid Baloun*, Miloš Velemínský Sr.
University of South Bohemia in České Budějovice, Faculty of Health and Social Sciences, Institute of Laboratory Diagnostics and Public Health, České Budějovice, Czech Republic

The assessment of the quality of life of children is continuously connected to their chronic health problems. In our opinion, the optimal indicator of the quality of life of children is the Pediatric Quality of Life InventoryTM questionnaire (PedsQLTM) because foreign literature is rich in its results. The validated PedsQLTM questionnaires are used to assess the quality of life of children and adolescents and their families. The goal of this article is to broaden the knowledge of medical and social workers in using these questionnaires in the case of selected disorders (ADHD and autism). The objective of this study is to verify the content and reliability of questionnaires that are used for the assessment of the quality of life. This study focuses on children with chronic disorders of ADHD and autism. We used the method of document content analysis. We searched for relevant sources in scientific databases - WOS, Pubmed, ScienceDirect, Scopus. PedsQLTM questionnaires are globally used for children with ADHD and autism. They are used for the assessment of the quality of life of children with the mentioned disorders and their families. The questionnaires do not focus only on the quality of life of individuals but families in total. It is one of the few questionnaires that assess the impact of such disorders on families.

Keywords: ADHD; Autism; PedsQLTM; Quality of Life

Received: July 13, 2018; Accepted: December 20, 2018; Prepublished online: March 4, 2019; Published: March 27, 2019  Show citation

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Baloun I, Velemínský M. Use of validated PedsQLTM questionnaires regarding children with ADHD and autism. Kontakt. 2019;21(1):87-92. doi: 10.32725/kont.2019.005.
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    References

    1. Autismus - Portál o poruchách autistického spektra (2018). [online] [cit. 2018-05-20]. Available from:http://www.autismus.cz/
    2. Ayers MD, Taylor EL, Branscum P, Hofford C (2016). Gross motor skills function and health quality of life among children with autism participating in autismoves gymnastics program: A pilot study. A J Health Studies 31(1): 57-67. Go to original source...
    3. Baloun I, Velemínský M (2018). Validizované dotazníky PedsQLTM pro hodnocení kvality života u dětí a jejich rodin. Kontakt 20(2): 168-174. DOI: 10.1016/j.kontakt.2018.04.0. Go to original source...
    4. Bastiaansen D, Koot HM, Ferdinand RF, Verhulst FC (2004). Quality of life in children with psychiatric disorders: Self, parent, and clinician report. J American Acad Child Adolesc Psychiatry 43(2): 221-230. DOI: 10.1097/00004583-200402000-00019. Go to original source... Go to PubMed...
    5. Becker A, Roessner V, Breuer D, Döpfner M, Rothenberger A (2011). Relationship between quality of life and psychopathological profile: Data from an observational study in children with ADHD. Eur Child Adolesc Psychiatry 20 (Suppl. 2): S267-S275. DOI: 10.1007/s00787-011-0204-2. Go to original source... Go to PubMed...
    6. Burke A (2014). Zen shiatsu: a longitudinal case study measuring stress reduction in a child with autism spectrum disorder. Int J Ther Message Bodywork 7(4): 23-28. Go to original source...
    7. Cheng Ch-P, Luh W-M, Yang A-L, Su Ch-T, Lin Ch-Y(2016). Agreement of Children and Parents Scores on Chinese Version of Pediatric Quality of Life Inventory Version 4.0: Further Psychometric Development. Applied Research Quality Life. 11(3):891-906. Go to original source...
    8. Coghill D, Hodgkins P (2016). Health-related quality of life of children with attention-deficit/hyperactivity disorder versus children with diabetes and healthy controls. Eur Child Adolesc Psychiatry 25(3): 261-271. DOI: 10.1007/s00787-015-0728-y. Go to original source... Go to PubMed...
    9. ePROVIDE (2018). [online] [cit. 2018-05-20]. Available from: https://eprovide.mapi-trust.org/
    10. Flapper BC, Shoemaker MM (2008). Effects of methylphenidate on quality of life in children with both developmental coordination disorder and ADHD. Dev Med Child Neurol 50(4): 294-299. DOI: 10.1111/j.1469-8749.2008.02039.x. Go to original source... Go to PubMed...
    11. Hsieh H-F, Shannon SE (2005). Three Approaches to Qualitative Content Analysis. Qualitative Health Research 15(9). DOI: 10.1177/1049732305276687. Go to original source... Go to PubMed...
    12. Ikeda E, Hinckson E, Krägeloh C (2014). Assessment of quality of life in children and youth with autism spectrum disorder: a critical review. Qual Life Res 23(4): 1069-1085. DOI: 10.1007/s11136-013-0591-6. Go to original source... Go to PubMed...
    13. Jafari P, Ghanizadeh A, Akhondzadeh S, Mohammadi MR (2011). Health-related quality of life of Iranian children with attention deficit/hyperactivity disorder. Qual Life Res 20(1): 31-36. DOI: 10.1007/s11136-010-9722-5. Go to original source... Go to PubMed...
    14. Jucovičová D, Žáčková H (2015). Máme dítě s ADHD: rady pro rodiče. Praha: Grada.
    15. Kose S, Eremis S, Ozturk O, Ozbaran B, Demiral N, Bildik T, Aydin C (2013). Health Related Quality of Life in children with Autism Spectrum Disorders: The clinical and demographic related factors in Turkey. Res Autism Spectr Disord 7(2): 7213-220. DOI:10.1016/j.rasd.2012.09.009. Go to original source...
    16. Lee YC, Yang H-J, Chen VC, Lee W-T, Teng M-J, Lin C-H, Gossop M (2016). Meta-analysis of quality of life in children and adolescents with ADHD: By both parent proxy-report and child self-report using PedsQLTM. Res Dev Disabil 51-52: 160-72. DOI: 10.1016/j.ridd.2015.11.009. Go to original source... Go to PubMed...
    17. Limbers CA, Heffer RW, Varni JW (2009). Health-related quality of life and cognitive functioning from the perspective of parents of school-aged children with Asperger's Syndrome utilizing the PedsQL. J Autism Dev Disord 39(11): 1529-1541. DOI: 10.1007/s10803-009-0777-5. Go to original source... Go to PubMed...
    18. Limbers CA, Ripperger-Suhler J, Boutton K, Ransom D, Varni JW (2011). A comparative analysis of health-relatedquality of life and family impact between children with ADHD treated in a general pediatric clinic and a psychiatric clinic utilizing the PedsQL. J Atten Disord 15(5): 392-402. DOI: 10.1177/1087054709356191. Go to original source... Go to PubMed...
    19. Marques JC, Oliveira JA, Goulardins JB, Nascimento RO, Lima AM, Casella EB (2013). Comparison of child self-reports and parent proxy-reports on quality of life of children with attention deficit hyperactivity disorder. Health Qual Life Outcomes 4;11: 186. DOI: 10.1186/1477-7525-11-186. Go to original source... Go to PubMed...
    20. Paclt I et al. (2007). Hyperkinetická porucha a poruchy chování. Praha: Grada.
    21. Pongwilairat K, Louthrenoo O, Charnsil C, Witoonchart C (2005). Quality of life of children with attention-deficit/hyperactivity disorder. J Med Assoc Thai 88(8): 1062-1066. Go to PubMed...
    22. Ravens-Sieberer U, Erhart M, Wille N, Bullinger M; BELLA study group (2008). Health-related quality of life in children and adolescents in Germany: Results of the BELLA study. Eur Child Adolesc Psychiatry 17 (Suppl. 1): 148-156. DOI: 10.1007/s00787-008-1016-x. Go to original source... Go to PubMed...
    23. Sheldrick RC, Neger NE, Shipman D, Perrin EC (2012). Quality of life of adolescents with autism spectrum disorders: concordance among adolescents' self-reports, parents' reports, and parents' proxy reports. Qual Life Res 21(1): 53-57. DOI: 10.1007/s11136-011-9916-5. Go to original source... Go to PubMed...
    24. Solans M, Pane S, Estrada MD, Serra-Sutton V, Berra S, Herdman M, et al. (2008). Health-Related Quality of Life Measurement in Children and Adolescents: A Systematic Review of Generic and Disease-Specific Instruments. Value Health 11(4): 742-764. DOI: 10.1111/j.1524-4733.2007.00293.x. Go to original source... Go to PubMed...
    25. Stokes MA, Kornienko L, Scheeren AM, Koot HM, Begeer S (2017). A comparison of children and adolescent's self-report and parental report of the PedsQL among those with and without autism spectrum disorder. Qual Life Res 26(3): 611-624. DOI: 10.1007/s11136-016-1490-4. Go to original source... Go to PubMed...
    26. Tavernor L, Barron E, Rodgers J, McConachie H (2013). Finding out what matters: validity of quality of life measurement inyoung people with ASD. Child Care Health Dev 39(4): 592-601. DOI: 10.1111/j.1365-2214.2012.01377.x. Go to original source... Go to PubMed...
    27. Thomas S, Sciberras E, Lycett K, Papadopoulos N, Rinehart N (2015). Physical functioning, emotional, and behavioral problems in children with ADHD and comorbid ASD: A Cross-Sectional Study. J Atten Disord 22(10): 1002-1007. DOI: 10.1177/1087054715587096. Go to original source... Go to PubMed...
    28. Varni JW (2004). Pediatric Quality of Life InventoryTM. [online] [cit. 2017-02-27]. Available from: http://www.mapiresearch.fr/t_03_serv_dist_Cduse_pedsql.htm
    29. Varni JW, Burwinkle TM (2006). The PedsQLTM as a Patient-Reported Outcome in Children and Adolescents with Attention-Deficit/Hyperactivity Disorders: a Population-Based Study. Health Qual Life Outcomes 4: 26. DOI: 10.1186/1477-7525-4-26. Go to original source... Go to PubMed...
    30. Varni JW, Burwinkle TM, Jacobs JR, Gottschalk M, Kaufman F, Jones KL (2003). The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module. Diabetes Care 26(3): 631-637. DOI: 10.2337/diacare.26.3.631. Go to original source... Go to PubMed...
    31. Varni JW, Handen BL, Corey-Lisle PK, Guo Z, Manos G, Ammerman DK, et al. (2012). Effect of aripiprazole 2 to 15 mg/d on health-related quality of life in the treatment of irritability associated with autistic disorder in children: a post hoc analysis of two controlled trials. Clin Ther 34(4): 980-992. DOI: 10.1016/j.clinthera.2012.02.023. Go to original source... Go to PubMed...
    32. Vzdělávání a autismus (2018). Poruchy autistického spektra. [online] [cit. 2018-05-20]. Available from: http://www.vzdelavaniaautismus.cz/o-autismu
    33. Xin B, Guo LT, Li XR, Shan YH, Fang H, Liu KZ, Situ MJ (2009). Quality of life of children with attention deficit hyperactivity disorders. Sichuan Da Xue Xue Bao Yi Xue Ban 40(6): 1091-1095. Go to PubMed...
    34. Yürümez E, Kiliç BG (2013). Relationship Between Sleep Problems and Quality of Life in Children With ADHD. J Atten Disord 20(1): 34-40. DOI: 10.1177/1087054713479666. Go to original source... Go to PubMed...

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