Kontakt 2024, 26(3):293-299 | DOI: 10.32725/kont.2024.032

The relationship between family burden, environment, and quality of life among caregivers of older adults with chronic diseases: a cross-sectional studySocial Sciences in Health - Original article

Bahtiar Bahtiar1, *, Rasdiyanah Rasdiyanah2, Nurlaila Fitriani3
1 Mulawarman University, Faculty of Medicine, Department of Nursing, Samarinda, Indonesia
2 Islamic State University of Alauddin, Faculty of Medicine and Health Sciences, Department of Nursing, Makassar, Indonesia
3 Hasanuddin University, Faculty of Nursing, Department of Nursing, Makassar, Indonesia

Aim: The number of older adults with chronic diseases is growing. When caring for and accompanying their family members, the quality of life (QoL) of elderly family caregivers is highly affected. The aim is to find the relationship between family burden, family environment, and QoL among caregivers of older adults with chronic diseases.

Methods: The study involved 409 caregivers in Samarinda (East Kalimantan), Makassar, and Gowa (South Sulawesi), Indonesia. It analyzed family burden, family environment, and QoL using descriptive, Spearman, Kruskal-Wallis, Mann-Whitney, and hierarchy regression analysis using SPSS version 21.

Results: Family burden was negatively associated with QoL physical domain (r = -0.05, p = 0.26), psychological domain (r = 0.05, p = 0.31), and social domain (r = -0.02, p = 0.55), Family burden was positively associated with QoL environmental domain (r = -0.09, p = 0.05). Family environment was positively associated with QoL physical domain (r = -0.24, p = 0.00), psychological domain (r = 0.39, p = 0.00), social domain (r = 0.30, p = 0.00), and environmental domain (r = 0.41, p = 0.00). Hierarchy regression analysis shows that family environment has a tremendous positive correlation on QoL physical domain (β = 0.21, p = 0.00), psychological domain (β = 0.31, p = 0.00), social domain (β = 0.23, p = 0.00), and environmental domain (β = 0.33, p = 0.00).

Conclusion: Family burden and family environment are crucial factors in the QoL of caregivers of older adults with chronic diseases. Family and public health nurses should develop interventions to relieve the burden and enhance family environments, ultimately improving caregiver's QoL.

Keywords: Chronic diseases; Elderly; Family burden; Family caregiver; Family environment; Quality of life
Conflicts of interest:

The authors declare that there has been no conflict of interest during the research, authorship, and publication process.

Received: February 29, 2024; Revised: April 22, 2024; Accepted: May 20, 2024; Prepublished online: June 4, 2024; Published: September 24, 2024  Show citation

ACS AIP APA ASA Harvard Chicago Chicago Notes IEEE ISO690 MLA NLM Turabian Vancouver
Bahtiar B, Rasdiyanah R, Fitriani N. The relationship between family burden, environment, and quality of life among caregivers of older adults with chronic diseases: a cross-sectional study. Kontakt. 2024;26(3):293-299. doi: 10.32725/kont.2024.032.
Share...
Download citation
  • BibTeX (.bib)
  • Bookends (.ris)
  • EasyBib (.ris)
  • EndNote (.enw)
  • EndNote 8 (.xml)
  • ISI WoS (.isi)
  • Medlars (.medlars)
  • Mendeley (.ris)
  • MODS (.xml)
  • Papers (.ris)
  • RefWorks (.txt)
  • RefManager (.ris)
  • RIS (.ris)
  • MS Word (.xml)
  • Zotero (.ris)
    • Open full article

    References

    1. Bahtiar B, Sahar J, Wiarsih S (2022). Experiences of implementing a coping mechanism for the elderly who face chronic diseases while living with the family: A phenomenology study. Front Nurs 9(1): 87-93. DOI: 10.2478/fon-2022-0011. Go to original source...
    2. Bierhals CCBK, Low G, Paskulin LMG (2019). Quality of life perceptions of family caregivers of older adults stroke survivors: A longitudinal study. Appl Nurs Res 47: 57-62. DOI: 10.1016/j.apnr.2019.05.003. Go to original source... Go to PubMed...
    3. Bonin-Guillaume S, Arlotto S, Blin A, Gentile S (2022). Family Caregiver's Loneliness and Related Health Factors: What Can Be Changed? Int J Environ Res Public Health 19(12): 7050. DOI: 10.3390/ijerph19127050. Go to original source... Go to PubMed...
    4. BPS (2021). Statistik Penduduk Lanjut Usia 2021, Badan Pusat Statistik. Mustari AS, et al. (Eds). Jakarta: Badan Pusat Statistik. [online] [cit. 2024-01-22]. Available from: https://www.bps.go.id/id/publication/2021/12/21/c3fd9f27372f6ddcf7462006/statistik-penduduk-lanjut-usia-2021.html
    5. Brouwers M, Broekharst DSE, de Boer B, Groen WG, Verbeek H (2023). An overview of innovative living arrangements within long-term care and their characteristics: a scoping review. BMC Geriatr 23(1): 442. DOI: 10.1186/s12877-023-04158-9. Go to original source... Go to PubMed...
    6. Cheung DSK, Tang SK, Ho KHM, Jones C, Tse MMY, Kwan RYC, et al. (2021). Strategies to engage people with dementia andtheir informal caregivers in dyadic intervention: A scoping review. Geriatr Nurs 42(2): 412-420. DOI: 10.1016/j.gerinurse.2021.02.002. Go to original source... Go to PubMed...
    7. Daley S, Murray J, Farina N, Page TE, Brown A, Basset T, et al. (2019). Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework. Int J Geriatr Psychiatry 34(1): 79-86. DOI: 10.1002/gps.4990. Go to original source... Go to PubMed...
    8. Dekawaty A, Malini H, Fernandes F (2019). Family experiences as a caregiver for patients with Parkinson's disease: a qualitative study. J Res Nurs 24(5): 317-327. DOI: 10.1177/1744987118816361. Go to original source... Go to PubMed...
    9. Ding S, Liu G, Xu F, Ji K, Zhao L, Zheng X, et al. (2023). The satisfaction of elderly people with elderly caring social organizations and its relationship with social support and anxiety during the COVID-19 pandemic: a cross-sectional study. BMC Public Health 23(1): 1206. DOI: 10.1186/s12889-023-15951-x. Go to original source... Go to PubMed...
    10. Duggleby W, Williams A, Ghosh S, Moquin H, Ploeg J, Markle-Reid M, Peacock S (2016). Factors influencing changes in health related quality of life of caregivers of persons with multiple chronic conditions. Health Qual Life Outcomes 14(81). DOI: 10.1186/s12955-016-0486-7. Go to original source... Go to PubMed...
    11. Ghasemi M, Arab M, Mangolian Shahrbabaki P (2020). Relationship Between Caregiver Burden and Family Functioning in Family Caregivers of Older Adults With Heart Failure. J Gerontol Nurs 46(6): 25-33. DOI: 10.3928/00989134-20200511-04. Go to original source... Go to PubMed...
    12. Gondodiputro S, Hutasoit DS, Rahmiati L (2019). The Elderly Expectations of the Caregiver's Sociodemographic Preferences: a Qualitative Approach. Glob Med Health Commun 7(2): 142-149. DOI: 10.29313/gmhc.v7i2.4653. Go to original source...
    13. Guo Y, Fu Y, Xu Y (2021). Satisfaction with neighbourhood environment moderates the associations between objective neighbourhood environment and leisure-time physical activity in older adults in Beijing, China. Health Soc Care Community 29(1): 206-214. DOI: 10.1111/hsc.13083. Go to original source... Go to PubMed...
    14. Han H, Yang K, Yang C, Yang G, Xu L (2022). Influence and Mechanism of a Multi-Scale Built Environment on the Leisure Activities of the Elderly: Evidence from Hefei City in China. Int J Environ Res Public Health 19(15): 9237. DOI: 10.3390/ijerph19159237. Go to original source... Go to PubMed...
    15. Hazzan AA, Dauenhauer J, Follansbee P, Hazzan JO, Allen K, Omobepade I (2022). Family caregiver quality of life and the care provided to older people living with dementia: qualitative analyses of caregiver interviews. BMC Geriatr 22(1): 86. DOI: 10.1186/s12877-022-02787-0. Go to original source... Go to PubMed...
    16. He H, Li T, Yu Y, Lin X (2020). Associations Between Built Environment Characteristics and Walking in Older Adults in a High-Density City: A Study From a Chinese Megacity. Front Public Health 8: 577140. DOI: 10.3389/fpubh.2020.577140. Go to original source... Go to PubMed...
    17. Hellis E, Mukaetova-Ladinska EB (2023). Informal Caregiving and Alzheimer's Disease: The Psychological Effect. Medicina (Kaunas) 59(1): 48. DOI: 10.3390/medicina59010048. Go to original source... Go to PubMed...
    18. Hsu, T, Nathwani N, Loscalzo M, Chung V, Chao J, Karanes C, et al. (2019). Understanding Caregiver Quality of Life in Caregivers of Hospitalized Older Adults With Cancer. J Am Geriatr Soc 67(5): 978-986. DOI: 10.1111/jgs.15841. Go to original source... Go to PubMed...
    19. Koukouli S, Kalaitzaki AE, Panagiotakis S, Markakis G, Werner P, Tziraki C (2022). Factors associated with the perception of services by dementia informal caregivers in Greece: the role of familism. Aging Ment Health 26(2): 305-313. DOI: 10.1080/13607863.2020.1857694. Go to original source... Go to PubMed...
    20. Laporte Uribe F, Heinrich S, Wolf-Ostermann K, Schmidt S, Thyrian JR, Schäfer-Walkmann S, Holle B (2017). Caregiver burden assessed in dementia care networks in Germany: findings from the DemNet-D study baseline. Aging Ment Health 21(9): 926-937. DOI: 10.1080/13607863.2016.1181713. Go to original source... Go to PubMed...
    21. Lethin C, Renom-Guiteras A, Zwakhalen S, Soto-Martin M, Saks K, Zabalegui A, et al. (2017). Psychological well-being over time among informal caregivers caring for persons with dementia living at home. Aging Ment Health 21(11): 1138-1146. DOI: 10.1080/13607863.2016.1211621. Go to original source... Go to PubMed...
    22. Li J, Tian L, Ouyang W (2022). Exploring the Relationship Between Neighborhood-Built Environment and Elderly Health: A Research Based on Heterogeneity of Age and Gender Groups in Beijing. Front Public Health 10: 882361. DOI: 10.3389/fpubh.2022.882361. Go to original source... Go to PubMed...
    23. Ma S, Shi J, Li L (2019). Dilemmas in caring for older adults in Zhejiang Province, China: A qualitative study. BMC Public Health 19(1): 311. DOI: 10.1186/s12889-019-6637-0. Go to original source... Go to PubMed...
    24. Pothiban L, Srirat C, Wongpakaran N, Pankong O (2020). Quality of life and the associated factors among family caregivers of older people with dementia in Thailand. Nurs Health Sci 22(4): 913-920. DOI: 10.1111/nhs.12746. Go to original source... Go to PubMed...
    25. Riasmini NM, Sahar J, Resnayati Y (2013). Family Experience in Handling the Elderly in Cultural Aspects of Indonesia. Jurnal Ners 8(1): 98-106. DOI: 10.20473/jn.v8i1.3884. Go to original source...
    26. Rodríguez-Sánchez E, Pérez-Peñaranda A, Losada-Baltar A, Pérez-Arechaederra D, Gómez-Marcos MÁ, Patino-Alonso MC, García-Ortiz L (2011). Relationships between quality of life and family function in caregiver. BMC Fam Pract 12: 19. DOI: 10.1186/1471-2296-12-19. Go to original source... Go to PubMed...
    27. Seng BK, Luo N, Ng WY, Lim J, Chionh HL, Goh J, Yap P (2010). Validity and reliability of the Zarit Burden Interview in assessing caregiving burden. Ann Acad Med Singap 39(10): 758-763. Go to original source...
    28. Sunarti E (2021). Inventori Pengukuran Keluarga. Bogor: IPB University Press. [online] [cit. 2024-01-22]. Available from: https://ipbpress.com/product/583-inventori-pengukuran-keluarga
    29. Thongduang K, Boonchieng W, Chautrakarn S, Ong-Artborirak P (2022). The Influence of Family Caregiver Knowledge and Behavior on Elderly Diabetic Patients' Quality of Life in Northern Thailand. Int J Environ Res Public Health 19(16): 10216. DOI: 10.3390/ijerph191610216. Go to original source... Go to PubMed...
    30. Tulek Z, Baykal D, Erturk S, Bilgic B, Hanagasi H, Gurvit IH (2020). Caregiver Burden, Quality of Life and Related Factors in Family Caregivers of Dementia Patients in Turkey. Issues Ment Health Nurs 41(8): 741-749. DOI: 10.1080/01612840.2019.1705945. Go to original source... Go to PubMed...
    31. United Nations (2015). World Population Ageing. [online] [cit. 2024-01-22]. Available from: https://www.un.org/en/development/desa/population/publications/pdf/ageing/WPA2015_Report.pdf
    32. Widyastuti RH, Sahar J, Rekawati E, Kekalih A (2023). "Let's just die together, Mom": Family caregivers' responses to caring for elderly people with dementia. Kontakt 25(4): 339-345. DOI: 10.32725/kont.2023.039. Go to original source...
    33. Wu ZJ, Song Y, Wang HL, Zhang F, Li FH, Wang ZY (2019). Influence of the built environment of Nanjing's Urban Community on the leisure physical activity of the elderly: An empirical study. BMC Public Health 19(1): 1459. DOI: 10.1186/s12889-019-7643-y. Go to original source... Go to PubMed...
    34. Yang SY, Fu SH, Hsieh PL, Lin YL, Chen MC, Lin PH (2022). Improving the care stress, life quality, and family functions for family-caregiver in long-term care by home modification. Ind Health 60(5): 485-497. DOI: 10.2486/indhealth.2021-0176. Go to original source... Go to PubMed...
    35. Yang X, Hao Y, George SM, Wang L (2012). Factors associated with health-related quality of life among Chinese caregivers of the older adults living in the community: A cross-sectional study. Health Qual Life Outcomes 10: 143. DOI: 10.1186/1477-7525-10-143. Go to original source... Go to PubMed...
    36. Yu J, Yang C, Zhang S, Zhai D, Li J (2020). Comparison study of perceived neighborhood-built environment and elderly leisure-time physical activity between Hangzhou and Wenzhou, China. Int J Environ Res Public Health 17(24): 9284. DOI: 10.3390/ijerph17249284. Go to original source... Go to PubMed...

    This is an open access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND 4.0), which permits non-comercial use, distribution, and reproduction in any medium, provided the original publication is properly cited. No use, distribution or reproduction is permitted which does not comply with these terms.


    Return to the content