Kontakt 2005, 7(1-2):17-23 | DOI: 10.32725/kont.2005.004
Health and social care aspects of the palliative care in childrenNursing
- 1 Jihočeská univerzita v Českých Budějovicích, Zdravotně sociální fakulta, katedra ošetřovatelství
- 2 Jihočeská univerzita v Českých Budějovicích, Zdravotně sociální fakulta, katedra supervize a odborné praxe
Approaches to taking care of a dying child and its family are of a great importance for the life quality and capability of parents and brothers and sisters in the process of facing the death. Pediatric hospices grant a support and assistance and practical background for children suffering from life threatening diseases, for their family members and close friends. The requirements for the pediatric palliative care are encountered in a great variety of diseases, which are different from diseases in the adulthood, many of them being very rare and familial. The type of the care necessary for the child and its family depends on the diagnosis; the diagnoses are divided into four main groups.
Keywords: children; life threatening diseases; hospice care
Published: June 29, 2005 Show citation
References
- American Academy of Pediatrics. 2000: Committee on Bioethics and Committee on Hospital care. Pediatrics 106 : 351-357
Go to original source...
Go to PubMed...
- Armstrong - Dailey, A., Zarbock, S. 2001: Hospice care for children. 2. vyd. New York: Oxford university Press. 416 s.
- Association for Children with Life-threatening or Terminal Conditions and their Families (ACT) and the Royal College of Pediatrics and Child Health. 1997: Report of a Joint Working Party - A Guide to the Development of Children's Palliative Care Services. Bristol: ACT and RCPCH
- Bagatell, R., Meyer, R., Herron, S., Berger, A., Villar, R. 2002: When Children Die: A Seminar Series for Pediatric Residents. Pediatrics 110 : 348-353
Go to original source...
Go to PubMed...
- Billinings, J.A.. 1998: What is palliative care? Journal of Palliative Medicine 1: 73-81
Go to original source...
Go to PubMed...
- Black, D. 1998: The dying child. British Medical Journal 316: 1376-1378
Go to original source...
Go to PubMed...
- Cook, P. 1999: Supporting sick children and their families. 1. vyd. Edinburgh: Hartcourt Publishers Limited. 269 s.
- Deremo, D. E. et al. 2000: Symtoms and Suffering at the End of Life in Children with Cancer. The New England Yournal of Medicine 5: 326-333
Go to original source...
Go to PubMed...
- Foley, G.V., Whittam, E.H. 1991: Care of the child dying of cancer: Part II. CA Cancer Journal for Clinicians. 41 : 25-60
Go to original source...
Go to PubMed...
- Foley, G.V., Whittam, E.H. 1990: Care of the child dying of cancer: Part I. CA Cancer Journal for Clinicians. 40 : 327-354
Go to original source...
Go to PubMed...
- Freyer, D. R. 2004: Care of the dying adolescent: Special Considerations. Pediatrics 113 : 381-388
Go to original source...
Go to PubMed...
- Goldman, A. 1998: ABC of palliative care: Special problems in children. British Medical Journal 316: 49-52
Go to original source...
Go to PubMed...
- James, L., Johnson, B. 1997: The needs of pediatric oncology patients during the palliative care phase. Journal of Pediatric Oncology Nursing 14: 83-95
Go to original source...
Go to PubMed...
- Jasénková, M. 2002: Paliatívna starostlivosť v detskom veku. Dostupné z [cit.2004-02-18]
- Koutecký, J., Cháňová, M. 2003: Děti s nádorovým onemocněním. 1. vyd. Praha: Triton, 2003. 215 s.
- Kreitler, S., Weyl Ben Arush, M. 2004: Psychosocial aspects of pediatric oncology. John Wiley and Sons Ltd, England, 456 s.
Go to original source...
- Masera, G., Spinetta, J. J., Jankovic, M., Ablin, A. R., D' Angio, G. J., Van Dongen-Melman, J., Eden, T., Martins, A. G., Mulhern, R. K., Oppenheim, D., Topf, R., Chesler, M. A. 1999: Guidelines for assistence to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology. Medical Pediatric Oncology 32: 44-48
Go to original source...
Go to PubMed...
- Matějček, Z. 2001: Psychologie nemocných a zdravotně postižených dětí. Praha: H+H. s. 66-67
- Nadace Klíček /Nadační fond Klíček - stručné představení organizace/ Dostupné z < http://www.klicek.org/o_nas/klicek.rtf>[cit.2004-02-18]
- Overton, J. 2001: The development of children's hospices in the UK. European Journal of Palliative Care 8 : 30-33
- Pilotný projekt detskej domácej starostlivosti. Dostupné z: [cit. 2004-02-18]
- Vyhnálek, M. 1997: Psychologické aspekty letálních nemocí v dětském věku. In: Říčan, P., Krejčířová, D. et al. Dětská klinická psychologie. 3. vyd. Praha: Grada Publishing, spol. s. r. o., s. 61-65
- Spenser, L., Battye, L. 2001: Palliative care in the community for children with cancer in South East England. European Yournal of Oncology Nursing 5 : 190-197
Go to original source...
Go to PubMed...
- Standardy domácí paliativní péče - Podklady pro práci paliativních týmů 2004. 1.vyd., Praha: Hospicové občanské sdružení Cesta domů
- Stevens, M. M., Dalla Pozza, L., Cavalletto, B., Cooper, M. G., Kilham, H. A. 1994: Pain and symptom control in paediatric palliative care. Cancer Surveys 21: 211-231
Go to PubMed...
- Vorlíček, J., Adam, Z., Pospíšilová, Y. 2004: Paliativní medicína. 2. vyd. Praha: Grada Publishing, a. s., 2004. 544 s.
- Vyhnálek, M. 1978: Psychologické aspekty cystické fibrózy. Rehabilitácia, Suppl.16 : 78-81 Worwick, J. 2000: A House called Helen. 2. vyd. Oxford University Press, 268 s.
- Zpráva komise odborníků WHO. Zmírnění bolesti při nádorových onemocněních a paliativní péče 1990: Světová zdravotnická organizace. Série technických zpráv 804. WHO Ženeva, vydala Česká společnost sester, 1998. 68s.