Kontakt 2011, 13(3):265-274 | DOI: 10.32725/kont.2011.032
Evaluation of psychosocial needs in patients at terminal stage of their diseaseNursing
- Ostravská univerzita v Ostravě, Lékařská fakulta, Ústav ošetřovatelství a porodní asistence
The requirements for the dignity of dying and good conditions of the death always inseparably include the quality of taking the care and evaluating and experiencing the end of the life by the patient. In spite of this, many patients are provided neither with specialized care nor with general palliative care at the end of their life. There are evidences suggesting that these patients encounter many unmet needs considerably reducing the quality of their life. The authors particularly point out the problem of lacking solutions to needs of patients at the terminal stage of their disease, very old fragile patients, or patients with dementia, due to the fact that the palliative treatment of non-cancer diseases is not very popular in the international context. Patients with the final stage of their chronic disease typically die in hospitals, their needs being frequently ignored. The target of the reviewing study presented here was to determine what psychosocial needs were found in oncological and nononcological patients and what tools are being most frequently employed for the measurement of psychosocial needs in patients at the terminal stage of their diseases. McIllmurray et al. (2003) consider six categories of psychosocial needs as follows: needs associated with the work of healthcare professionals, the need for information, the need for support, the need for finding their own intensity and emotional needs, spiritual needs, and practical needs, which are furthermore discussed in the work. Based on an analysis of research works carried out, it was found that in the field of psychosocial needs, the patients experiencing the palliative treatment feel a particular importance of relationships between them, the team of care providers and the family. In abroad, standardized questionnaires, as for example the NEQ (Needs Evaluation Questionnaire) or PNI (Psychosocial Need Inventory), are used in the measurement of psychosocial needs of patients submitted to the palliative treatment. Establishing the psychotherapeutic relationship with the patient based on the trust, having respect one for another, open communication and supporting the independence, should become an important element of taking care of patients at the terminal stage of their disease. Support of relationships between the patients and their families is also an integral component of this issue.
Keywords: palliative care; needs; unmet needs; death; dying
Received: June 9, 2011; Accepted: September 9, 2011; Published: September 29, 2011 Show citation
References
- Alan J (1989). Etapy očima sociologie. 1. vydání. Brno: Edice pyramida, 439 p.
- Bártlová S (2005). Sociologie medicíny a zdravotnictví. 6. přepracované. vydání. Praha: Grada Publishing, 188 p.
- Currow DC, Agar M, Sanderson Ch, Abernethy AP (2008). Population who die without specialist palliative care: does lowe uptake equate with unmet need. Palliative medicine, 22/1: 43-50.
Go to original source...
Go to PubMed...
- Davies E, Higginson I (2005). Systematic review of specialist palliative day-care for adults with cancer. Support Care Cancer, 13/8: 607-627.
Go to original source...
Go to PubMed...
- Diwan S, Moriarty D (1995). A Conceptual Framework For Identifying Unmet Health Care Needs of Community Dwelling Elderly. The Journal of Applied Gerontology, 14/1: 47-63.
Go to original source...
- Dostálová O (1998). Emocionální problémy v paliativní medicíně. In Vorlíček J, Adam Z: Paliativní medicína. 1. vydání. Praha: Grada Publishing, pp. 389-413.
- Ebersolle P, Hess P, Schmidt Luggen A (2004). Toward healthy aging: human needs and nursing response. 6th ed. St. Louis: C. V. Mosby, 789 p.
- Edmonds P, Karlsen S, Khan S, Addington-Hall J (2001). A comparison of the palliative care needs of patients dying from chronic respiratory diseases and lung cancer. Palliative Medicine, 15/4: 287-295.
Go to original source...
Go to PubMed...
- Fitzsimons D, Mullan D, Wilson JS, Conway B, Corcoran B, Dempster M, Gamble J, Stewart C, Rafferty S, McMahon M, MacMahon J, Mulholland P, Stockdale P (2007). The challenge of patients' unmet palliative care needs in the final stages of chronic illness. Palliative Medicine, 21/4: 313-322.
Go to original source...
Go to PubMed...
- Glaser B, Strauss A (1974). Interaktion mit Sterbenden: Beobachtungen für Ärzte, Schwestern, Seelsorger und Angehörige. Gottingen: Vandenhoeck & Ruprecht, 285 p.
- Gourdji I, McVey L, Puden M (2009). A Quality End of Life from a Palliative Care Patient's Perspective. Journal of Palliative Care, 25/1: 40-50.
Go to original source...
Go to PubMed...
- Hampton D, Hollis DE, Lloyd DA, Taylor J (2007). Spiritual Needs of Persons With Advanced Cancer. American Journal of Hospice and Palliative Medicine, 24/1: 42-48.
Go to original source...
Go to PubMed...
- Haškovcová H (2000). Thanatologie. 1. vydání. Praha: Galén, 191 p.
- Jenkins V, Fallowfield L, Saul J (2001). Information needs of patients with cancer: results from a large study in UK cancer centres. British Journal of Cancer, 84/1: 48-51.
Go to original source...
Go to PubMed...
- Johnstonová G (2007). Sociální smrt. Důsledky zdlouhavého umírání. In Payneová S et al. (2007). Principy a praxe paliativní péče. 1. vydání. Brno: Společnost pro odbornou literaturu, pp. 371-383.
- Kalvach Z (2004). Umírání a paliativní péče v ČR (situace, reflexe, vyhlídky). 1. vydání. Praha: Cesta domů, 103 p.
- Kellehear A (2000). Spirituality and palliative care: a model of needs. Palliative Medicine, 14/2: 149-155.
Go to original source...
Go to PubMed...
- Kissane D, Yates P (2005). Psychická a existencionální tíseň. In O'Connor M, Aranda S. Paliativní péče pro sestry všech oborů. 1. vydání. Praha: Grada Publishing, pp. 189-200.
- McIllmurray MB, Francis B, Harman JC, Morris SM, Soothill K, Thomas C (2003). Psychosocial needs in cancer patients related to religious belief. Palliative Medicine, 17: 49-54.
Go to original source...
Go to PubMed...
- Murray SA, Kendall M, Boyd K, Worth A, Benton TF (2004). Exploring the spiritual needs of people dying of lung cancer or heart failure: a prospective qualitative interview study of patients and their carers. Palliative Medicine, 18/1: 39-45.
Go to original source...
Go to PubMed...
- Liang LP, Dunn SM, Gorman A, Stuart-Harris R (1990). Identifying priorities of psychosocial need in cancer patients. British Journal of Cancer, 62/6: 1000-1003.
Go to original source...
Go to PubMed...
- Lloydová Williamsová M (2007). Emoce a kognice. Psychologické aspekty péče. In Payneová S et al.: Principy a praxe paliativní péče. 1. vydání. Brno: Společnost pro odbornou literaturu, pp. 317-330.
- Osse BHP, Vernooij-Dassen MJFJ, de Vree BPW, Schadé E, Grol RPTM (2000). Assessment of the Need for Palliative Care as Perceived by Individual Cancer Patients and Their Families. Cancer, 88/4: 900-911.
Go to original source...
- Osse BHP, Vernooij-Dassen MJFJ, Schadé E, Grol RPTM (2007). A practical instrument to explore patients' needs in palliative care: the Problems and Needs in Palliative Care questionnaire - short version. Palliative Medicine, 21: 391-399.
Go to original source...
Go to PubMed...
- Pollard A, Swift K (2005). Komunikační dovednosti v paliativní péči. In O'Connor M, Aranda S: Paliativní péče pro sestry všech oborů. 1. vydání. Praha: Grada Publishing, pp. 29-42.
- Richardson A, Medina J, Richardson A (2005). Patients' Needs Assessment Tools in Cancer Care: Principles and Practice. London: NHS Trust.
- Sloane P, Zimmerman S, Williams Ch (2008). Dying With Dementia in Long-Term Care. The Gerontologist, 48/6: 741-751.
Go to original source...
Go to PubMed...
- Soothill K, Morris S, Harman J, Francis B, Thomas C, McIllmurray M (2001). The significant unmet needs of cancer patients: probing psychosocial concerns. Support Care Cancer, 9/8: 597-605.
Go to original source...
Go to PubMed...
- Steinhauser KE, Clipp EC, McNeilly M, Christakis NA, McIntyre LM, Tulsky JA 2000). In search of good death: observation of patients, families, and providers. Ann Inter Med. 16/132: 825-832.
Go to original source...
Go to PubMed...
- Svatošová M (2005). Sociální práce s lidmi umírajícími v hospici. In Matoušek O, Koláčková J, Kodymová P: Sociální práce v praxi. 1. vydání. Praha: Portál, pp. 195-210.
- Tamburini M, Gangeri L, Brunelli C (2000). Assessment of hospitalized cancer patients'needs by the Needs Evaluation Questionnaire. Annals of Oncology, 11/1: 31-37.
Go to original source...
Go to PubMed...
- Tomagová M et al. (2008). Potreby v ošetrovateľstve. Martin: Vydavateľstvo Osveta, 198 p.
- Wijk H, Grimby A (2008). Needs of Elderly Patients in Palliative Care. American Journal of Hospice and Palliative Medicine, 25/2: 106-111.
Go to original source...
Go to PubMed...
- WHO (1990). Expert Committee: Cancer Pain Relief and Palliative Care. Geneva, World Health Organisation.