Kontakt 2017, 19(3):e211-e219 | DOI: 10.1016/j.kontakt.2017.06.003

The stigmatization of people living with HIV/AIDS in the Czech Republic - from their own perspectiveSocial Sciences in Health - Original article

Monika Bjelončíková*, Alice Gojová
Ostravská univerzita, Fakulta sociálních studií, Ostrava, Česká republika

The issue of HIV/AIDS is on the front burner in the Czech Republic because the number of newly diagnosed cases has been rising dramatically. One of the essential problems is late diagnosis of the disease. Another typical trend is longer life expectancy for those with HIV, including people with HIV who live to retirement age or start a family. HIV/AIDS is considered to be a so-called stigmatizing disease. In this context, there is no scientific evidence of the social impacts of the disease that could serve as a basis for social assistance provided to this target group. This article offers partial results of a qualitative research conducted in 2016. It deals with the phenomenon of stigmatization from the perspective of people living with HIV/AIDS in the Czech Republic, and considers it to be a social consequence of HIV-positivity. Data collection was based on the techniques of an in-depth semi-structured interview, observation, and two focus groups with people living with HIV/AIDS. Data analysis made use of the method of social constructionist grounded theory (described by K. Charmaz) and altogether it comprised 11 testimonies of people living with HIV/AIDS and 2 other relevant persons. The research results (which are framed by Goffman's theory of stigma) proved that stigmatization is a key issue for the respondents and that in their opinion, stigma related to HIV/AIDS significantly affects the lives of HIV-positive people.

Keywords: HIV, AIDS; Constructionism; Stigmatization; Helping professions

Received: February 1, 2017; Revised: April 20, 2017; Accepted: June 27, 2017; Published: September 29, 2017  Show citation

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Bjelončíková M, Gojová A. The stigmatization of people living with HIV/AIDS in the Czech Republic - from their own perspective. Kontakt. 2017;19(3):e211-219. doi: 10.1016/j.kontakt.2017.06.003.
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    References

    1. Malý M, Němeček V, Zákoucká H. Tisková zpráva Národní referenční laboratoře pro HIV/AIDS - Trendy vývoje a výskyt HIV/AIDS v ČR v roce 2015. Zpráva o výskytu a šíření HIVA/DS za rok 2015, SZÚ, Praha. 2016. [online] [cit. 2016-12-07]. Dostupné z: http://www.szu.cz/uploads/documents/CeM/HIV_AIDS/rocni_zpravy/2015/Tiskova_zprava_NRL_pro_HIV_AIDS_v_CR_v_roce_2015.pdf
    2. Malý M, Němeček V, Zákoucká H. Grafy k tiskové zprávě NRL pro HIV/AIDS v roce 2015. Zpráva o výskytu a šíření HIV/AIDS za rok 2015, SZÚ, Praha. 2016. [online] [cit. 2016-12-07]. Dostupné z: http://www.szu.cz/uploads/documents/CeM/HIV_AIDS/rocni_zpravy/2015/Grafy_k_tiskove_zprave_NRL_pro_HIV_AIDS_v_CR_v_roce_2015.pdf
    3. SZU ČR. Zpráva o výskytu a šíření HIV/AIDS za rok 2016: Měsíční výkazy o výskytu HIV/AIDS v České republice a tiskové zprávy Národní referenční laboratoře pro HIV/AIDS - Listopad 2016: výskyt a šíření HIV/AIDS v České republice. [online] [cit. 2017-01-20]. Dostupné z: http://www.szu.cz/uploads/documents/CeM/HIV_AIDS/rocni_zpravy/2016/HIV_AIDS_11_2016.pdf
    4. Malý M, Němeček V, Zákoucká H. Výskyt a šíření HIV/AIDS v České republice v roce 2014. Zprávy centra epidemiologie a mikrobiologie, SZÚ, Praha. 2015;24(9):294-30.
    5. Němeček V, Malý M., Zákoucká H, Nejedlá M. Tisková zpráva o výskytu HIV/AIDS v ČR u příležitosti Světového dne boje proti AIDS 2016. SZÚ, Praha, 2016. [online] [cit. 2016-12-20]. Dostupné z: http://www.szu.cz/uploads/documents/CeM/HIV_AIDS/rocni_zpravy/2016/TK_HIV_AIDS_v_CR_u_prilezitosti_Svetoveho_dne_boje_proti_AIDS_2016.pdf
    6. Kolářová K. Diskurz rizika v prevenci HIV/AIDS. Gender, rovné příležitosti, výzkum 2009;10(1):16-25.
    7. Himl P, Seidl J, Schindler F. Miluji tvory svého pohlaví: homosexualita v dějinách a společnosti českých zemí. Praha: Argo; 2013.
    8. Shivairova O, Aster V, Konig J, Machala L, Braun R, Staňková M. Kvalita života HIV pozitivních osob. Psychologie 2010;4(2):22-40.
    9. Salavec M, Boštíková V, Bošťák P. HIV infekce - historie, patogeneze, klinické manifestace. Česko-Slovenská Dermatologie 2011;86(2):67-82.
    10. Černý R, Kapla J, Machala L. Ložiskové léze CNS u pacientů s HIV infekcí. Česká a slovenská neurologie a neurochirurgie 2010;73(4):374-8.
    11. Rozsypal H, Staňková M, Sedláček D, Snopková S, Kapla J, Aster V et al. Doporučený postup komplexní péče o dospělé infikované HIV. Klinická mikrobiologie a infekční lékařství 2010;4(2):22-40.
    12. Uhlíř M. Třicet let s AIDS. Respekt 2011. [online] [cit: 2017-09-13]. Dostupné z: https://www.respekt.cz/zkumavka/tricet-let-s-aids
    13. Hall N. We care don't we? Social workers, the profession and HIV/AIDS. Social Work in Health Care 2007;44(1-2):55-72. Go to original source... Go to PubMed...
    14. Lichtenstein B, Sturdevant MS, Mujumdar AA. Psychosocial Stressors of Families Affected by HIV/AIDS: Implications for Social Work Practice. Journal of HIV/AIDS & Social Services 2010;9(2):130-52. Go to original source...
    15. Linsk NL. Thirty years into the HIV epidemic: social work perspectives and prospects. Journal of HIV/AIDS & Social Services 2011;10(3):218-29. Go to original source...
    16. Vance DE, Struzick TC, Masten J. Hardiness, successful aging, and HIV: implications for social work. Journal of Gerontological Social Work 2008;51(3-4):260-83. Go to original source... Go to PubMed...
    17. Levy-Dweck S. HIV/AIDS fifty and older. A Hidden and Growing Population. Journal of Gerontological Social Work 2005;46(2):37-50. Go to original source... Go to PubMed...
    18. Garcia J, Parker C, Parker RG, Wilson PA, Philbin M, Hirsch JS. Psychosocial Implications of Homophobia and HIV Stigma in Social Support Networks: Insights for High-Impact HIV Prevention Among Black Men who Have Sex With Men. Health Education & Behavior 2016;43(2):217-25. Go to original source... Go to PubMed...
    19. Columbia University 2016. Richard Parker. [online] [cit. 2016-09-13]. Dostupné z: https://www.mailman.columbia.edu/people/our-faculty/rgp11
    20. Daniel H, Parker R. Sexuality, Politics and AIDS in Brazil. London: The Falmer Press; 1993.
    21. Parker R, Aggleton P. HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action. Rio de Janeiro: ABIA and TCRU; 2002. Go to original source...
    22. Maluwa M, Aggleton P, Parker R. HIV/AIDS stigma, discrimination and human rights - a critical overview. Health and Human Rights 2002;6(1):1-18. Go to original source...
    23. UNGA. Political Declaration on HIV/AIDS. New York: UN; 2006. [online] [cit. 2016-09-13]. Dostupné z: http://www.unaids.org/en/media/unaids/contentassets/dataimport/pub/report/2006/20060615_hlm_politicaldeclaration_ares60262_en.pdf
    24. UNGA. Political Declaration on HIV and AIDS: Intensifying Our Efforts to Eliminate HIV and AIDS. New York: UN; 2011. [online] [cit. 2016-09-13]. Dostupné z: http://www.unaids.org/sites/default/files/sub_landing/files/20110610_UN_A-RES-65-277_en.pdf
    25. Human Rights and HIV/AIDS: Now more than ever. New York: Open Society Institute; 2009. [online] [cit. 2016-09-13]. Dostupné z: https://www.opensocietyfoundations.org/sites/default/files/nmte_20090923_0.pdf
    26. Joint action for results. UNAIDS outcome framework 2009-2011. Geneva: UNAIDS; 2010. [online] [cit. 2016-09-13] Dostupné z: http://data.unaids.org/pub/BaseDocument/2010/jc1713_joint_action_en.pdf
    27. Joint ILO/WHO guidelines on health services and HIV/AIDS. Geneva: International Labour Office; 2005.
    28. Principles for preventing HIV infection among drug users. Copenhagen: WHO Regional Office for Europe; 1998. [online] [cit. 2016-09-13]. Dostupné z: http://apps.who.int/iris/bitstream/10665/108080/1/EUR_ICP_LVNG_02_06_01.pdf
    29. The UN declaration of commitment and people living with HIV/AIDS (PWAs). Geneva: UNAIDS; 2001. [online] [cit. 2016-09-13]. Dostupné z: http://data.unaids.org/pub/BaseDocument/2007/gipa2001un_en.pdf
    30. Guidelines on surveillance among populations most at risk for HIV. Geneva: UNAIDS; 2011. [online] [cit. 2016-09-13]. Dostupné z: http://files.unaids.org/en/media/unaids/contentassets/documents/epidemiology/2011/20110518_Surveillance_among_most_at_risk.pdf
    31. Protocol for the identification of discrimination against people living with HIV. Geneva: UNAIDS; 2000. [online] [cit. 2016-09-13]. Dostupné z: http://www.unaids.org/en/media/unaids/contentassets/dataimport/publications/irc-pub01/jc295-protocol_en.pdf
    32. Reducing HIV stigma and discrimination: a critical part of national AIDS programmes. Geneva: UNAIDS; 2007. [online] [cit. 2016-09-13]. Dostupné z: http://data.unaids.org/pub/Report/2008/JC1521_stigmatisation_en.pdf
    33. UNAIDS report on the global AIDS epidemic: Global report. Geneva: UNAIDS; 2012. [online] [cit. 2016-09-13]. Dostupné z: http://www.unaids.org/sites/default/files/media_asset/20121120_UNAIDS_Global_Report_2012_with_annexes_en_1.pdf
    34. UNSG Ban Ki-moon. United to end AIDS: achieving the targets of the 2011 Political Declaration: Report of the Secretary-General. New York: UN; 2012. [online] [cit. 2016-09-13]. Dostupné z: http://www.unaids.org/en/media/unaids/contentassets/documents/document/2012/20120402_UNGA_A-66-757_en.pdf
    35. WHO, UNAIDS, UNICEF. Towards universal access: Scaling up priority HIV/AIDS interventions in the health sector: Progress report 2010. Geneva: WHO; 2010. [online] [cit. 2016-09-13]. Dostupné z: https://www.unicef.org/eapro/Towards_Universal_Access_on_HIVAIDS.pdf
    36. Natale AP (Ed). Global HIV and AIDS: Calling all Social Work Educators. Social Work Education 2010;29(1):27-47. Go to original source...
    37. Sogren M (Ed.). Reconfiguring social work education to fight HIV - AIDS: a model for developmental contexts. Social Work Education 2012;31(7):880-95. Go to original source...
    38. Strug DL (Ed.). Challenges and changing roles in HIV/AIDS social work. Social Work in Health Care 2002;35(4):1-19. Go to original source... Go to PubMed...
    39. Clark J. Teaching a module on HIV and AIDS for social work students - strategies, content and outcome. Social Work Education 2013;32(7):906-19. Go to original source...
    40. Mravčík V. Účinnost programů výměny sterilních jehel a stříkaček při snižování rizika nákazy HIV/AIDS mezi injekčními uživateli drog: odborné podklady pro činnost. Praha: Úřad vlády České republiky; 2004. [online] [cit. 2016-09-13]. Dostupné z: http://apps.who.int/iris/bitstream/10665/43107/2/9241591641_cze.pdf
    41. Burrows D. Prevencia epidémie HIV - Materiál pre tvorcov stratégie a vedúcich predstavitelov verejnej správy o úlohe programov výmeny ihiel a striekaciek v krajinách strednej a východnej Európy a krajinách bývalého Sovietského zväzu. Bratislava: Eterna; 2002.
    42. Conrad P, Barker KK. The social construction of illness: key insights and policy implications. Journal Of Health And Social Behavior 2010;51(S):67-79. Go to original source... Go to PubMed...
    43. Segre S. Social Constructionism as a Sociological Approach. Human Studies 2016;39(1):93-9. Go to original source...
    44. Brown P. Naming and Framing: The Social Construction of Diagnosis and Illness. Journal of Health and Social Behavior 1995;35(Extra Issue):34-52. Go to original source...
    45. Petersen S, Heesacker M, Schwart RC. Physical Illness: Social Construction or Biological Imperative?. Journal of Community Health Nursing 2001;15(4):213-22. Go to original source... Go to PubMed...
    46. Skrzypek M. The social origin of illness experience - an outline of problems. Annals of Agricultural and Environmental Medicine 2014;21(3):654-60. Go to original source... Go to PubMed...
    47. Conrad P. Eliot Freidson's revolution in medical sociology. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 2007;11(2):141-4. Go to original source... Go to PubMed...
    48. Goffman E. Stigma: Proznámky k problému zvládání narušené identity. Praha: SLON; 2003.
    49. HIV-related stigma, discrimination and human rights violations. Geneva: UNAIDS; 2005. [online] [cit. 2016-09-21]. Dostupné z: http://data.unaids.org/publications/irc-pub06/jc999-humrightsviol_en.pdf
    50. Miovsky M. Kvalitativní přístup a metody v psychologickém výzkumu. Praha: Grada; 2006.
    51. Charmaz K. Constructing grounded theory: a practical guide through qualitative analysis. Los Angeles, CA: SAGE publishing; 2009.
    52. Charmaz K, Thornberg R, Keane E. Evolving Grounded Theory and Social Justice Inquiry. In: Denzin NK, Lincoln YS. The SAGE Handbook of qualitative research. Thousand Oaks, CA: SAGE publishing; 2010.
    53. Charmaz K. Constructing grounded theory: a practical guide through qualitative analysis. Thousand Oaks, CA: SAGE publishing; 2006.
    54. Charmaz K. Constructionism and the grounded theory. In: Holstein JA, Gubrium JF (Eds). Handbook of Constructionist Research. New York: The Guilford Press; 2008, pp. 397-412. Go to original source...
    55. Charmaz K. Grounded theory as an emergent method. In: Hesse-Biber SN, Leavy P (Eds). Handbook of emergent methods. New York: Guilford Press; 2008, pp. 155-70.

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