Kontakt 2020, 22(2):104-110 | DOI: 10.32725/kont.2020.012

Selected social aspects in the life of patients with multiple sclerosisNursing - Original article

Anna Ovšonková *, Edita Hlinková, Michaela Miertová, Katarína Žiaková
Comenius University in Bratislava, Jessenius Faculty of Medicine in Martin, Department of Nursing, Martin, Slovak Republic

Aim: To describe and interpret the impact of multiple sclerosis (MS) on selected social aspects of life, on the family and working life.

Design: A qualitative cross-sectional study.

Methods: The group consisted of 14 probands with MS, with an average age of 44.7 years (± 9.8) and average disease duration of 9.93 years (± 5.97). To collect empirical data, we used a semi-structured interview according to a pre-prepared protocol of our own design, in the period between January-October 2018. The interviews were analysed via an Interpretative Phenomenological Analysis.

Results: Due to the disease symptoms, the probands experienced limitations when performing daily activities. They also experienced fear of losing self-sufficiency and were worried about the future. With the progression of the disease, there were also limitations in their working life which affected the quality of their lives. For most of them, MS also had an impact on the quality of family relationships including relations with their partners. Although the partners and children of probands were a source of social support, these people needed some time to accept MS and live with it.

Conclusions: Knowledge of selected aspects of life in individuals with MS can contribute to knowing their problems, and makes it possible to provide specific help within complex care provision.

Keywords: Disability; Employment; Family; Multiple sclerosis; Social aspects

Received: November 18, 2019; Revised: February 3, 2020; Accepted: March 10, 2020; Prepublished online: April 8, 2020; Published: May 6, 2020  Show citation

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Ovšonková A, Hlinková E, Miertová M, Žiaková K. Selected social aspects in the life of patients with multiple sclerosis. Kontakt. 2020;22(2):104-110. doi: 10.32725/kont.2020.012.
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