Kontakt 2021, 23(4):274-280 | DOI: 10.32725/kont.2021.049

Lived experience of outpatients with Parkinson's disease: an interpretative phenomenological analysisNursing - Original article

Martina Tomagová *, Ivana Bóriková, Martina Lepiešová, Jana Nemcová, Ivan Farský, Mária Zanovitová
Comenius University in Bratislava, Jessenius Faculty of Medicine in Martin, Department of Nursing, Martin, Slovak Republic

Introduction: The chronic, degenerative and progressive character of Parkinson's disease (PD) is reflected in the living experience of patients - and it also has an impact on their dignity.

Aim: The aim of the study was to increase the understanding of the lived experience of outpatients with PD and its impact on their dignity.

Methods: The study design is explorative using interpretative phenomenological analysis (IPA). Semi-structured interviews were held with 11 participants with PD between February-May 2018. Interviews were conducted as individual face-to-face interviews, in privacy with no involvement of family members according to the interview protocol. Data analysis was performed according to IPA process using the ATLAS.ti 8.0 program.

Results: Our study identified five themes that reflect the lived experience of outpatients with PD: Me and my Parkinson's: losses, acceptance and coping; The Need to Remain Self-sufficient versus the Fear of Dependence; How Do Others See Me: Scorn versus Acceptance; Lack of Information versus the Need to Be Informed; Lack of Respect versus the Accommodating Approach of Healthcare Professionals. We discovered their impact on dignity, especially in the areas concerning autonomy, self-esteem, self-worth, identity, respect, and other people's appreciation.

Conclusions: Patients with PD are confronted with many serious changes on a daily basis, which significantly influence their dignity. This fact must be known and respected by health care professionals when providing patient-oriented care.

Keywords: Dignity; Health care; Interpretative Phenomenological Analysis; Lived experience; Parkinson's disease
Grants and funding:

This research is supported by VEGA grant 1/0090/17: Dignity of patients with neurological disease in the context of healthcare: interpretative phenomenological approach.

Conflicts of interest:

The authors have no conflict of interests to declare.

Received: July 6, 2021; Revised: September 21, 2021; Accepted: November 4, 2021; Prepublished online: November 11, 2021; Published: December 6, 2021  Show citation

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Tomagová M, Bóriková I, Lepiešová M, Nemcová J, Farský I, Zanovitová M. Lived experience of outpatients with Parkinson's disease: an interpretative phenomenological analysis. Kontakt. 2021;23(4):274-280. doi: 10.32725/kont.2021.049.
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